19/07/2025
Well, what a f**ken s**t start to the term!
I got a phone call last Sunday evening from the taxi company to say that Blake would be picked up on Monday at 9.30am to take him to school and drop him back at home at 2pm as they were short staffed.
I ended up taking His Royal Highness Prince Sticky Bird of Salisbury Manor to school on Monday myself because 1: I have Mondays off (life admin day) and 2: I didn’t fancy HRH getting home at 2pm and 3: we don’t have afternoon support on a Monday, Tuesday or Wednesday afternoon which means if HRH comes home grumpy, I know I’m in for potentially 2.5 hours of physical abuse until Shon gets home.
The physical abuse happened before the drive to school, whilst getting him dressed. Apparently he wanted to wear a thermal singlet, 2 T-shirt’s, a hoodie, another T-shirt , 2 pair of track pants, socks & shoes. In the grand scheme of things, it really didnt matter that was what he wanted to wear but me being me and HRH has always run warmer, thought he would be too hot. I now have fading green bruising all over my arms and one on my breast almost a week later.
On Monday after another phone call from the taxi company, I put 2 and 2 together and realised he had been kicked off his usual taxi run (HRH would usually get picked up at 8.30am and get dropped off at just before 3) I don’t know why people cannot be up front and honest with me, when school was informed, why is it up to someone else to pass the message on.
He is now on a taxi run all by himself. A safety cage between the driver and his harness all have to be altered just for him. The lengths the company and school have to go to is insane. (His new driver, partner and school have been incredible with doing everything they can to still transport him & I truly appreciate everything they are doing to make our lives a little easier) why is my child an ar****le?
Yesterday (or this weekend) was supposed to be respite weekend. I went into school to pick HRH up, along with my dad (who sits in the front to prevent Blake sitting there otherwise he beats me whilst I’m driving), anywho, I arrived late at respite , about 3.10 due to traffic, parked up, got his bags and pillow out of the loaf (our van because it looks like a loaf of bread), when the house team leader met me at the side of the loaf. He asked if I’d heard from the needs assessor. I told him no, I hadn’t. He then told me they could no longer support Blake safely and the needs assessor was supposed to let us know. Again, why can’t people be upfront and honest with us and have to rely on others to pass on a message?
HRH lost his s**t as I tried to put him back in the loaf, and buckle him back in. I told HRH he had been kicked out due to his behaviour in the last week of the holidays. To be fair I was waiting for them to put him in the too hard basket and kick him out. It costs an absolute crapload for him to be in respite care for 72 hours a fortnight. Even though 72 hours seems a long time, when you are absolutely fu***ng exhausted and at the end of your rope, it’s not really long enough.
In the last week of the school holidays, HRH was dropped off at respite care on Tuesday at 3 and supposed to be there until Friday at 3. I got a phone call at 10.15am on Wednesday telling me we needed to pick him up due to an incident in which he hit a lady carer across the face with his device. Apparently he had woken up grumpy but not sure what the catalyst of that incident was. I was due to start work at 10.30 and Shon had just had Monday and Tuesday off due to HRH giving me a bashing when I’m alone with him. (Although, he’s getting braver and dishing out his punishments when Shon isn’t looking)
When Shon pick up HRH, the team leader told Shon that in one sitting (from when he woke up grumpy until obviously before they called us to pick him up) they fed him a loaf and a half of bread, 1kg of trail mix & 1kg of potatoes/hot chips. Obviously they were trying to feed him to either shut him up or try and snap him out of his grumpy mood. Who in their right mind would feed a child who is driven by food that much is beyond me but that is also abuse.
Shon had to take emergency leave from work but would go in when Blake went to sleep until 3.30am, just to make up hours. What annoys me the most is respite would have made the decision to kick him out from that moment, they would have known for 9 days but couldn’t be upfront with us and relied on someone else to pass the message on who failed to do so then conveniently wouldn’t answer phone calls.
The really sad thing is, it’s Logan’s 15th birthday tomorrow and we had plans of going out for dinner and stuff that we absolutely cannot do when HRH is home. Logan was so upset when I came home with HRH.
I guess this means no more weekends away, no more quiet weekends, getting stuff done around the house is going to be harder. All the stuff people with normal children take for granted. The only thing left to get kicked out of is school. I bloody hope that doesn’t happen because we would be absolutely screwed!!
Apparently, what doesn’t kill you makes you stronger so watch this space………
