04/10/2025
This is not craft related but it is why I have not been crafting and posting a lot.
After failing to respond to ipi/nivo, I was able to get in Regeneron Pharmaceuticals’, clinical trial phase one (REGN10597: Anti PD-1-IL2RA-IL2 Fusion Protein). My first dose was on February 25, 2025 with the other doses scheduled every two weeks. It means we travel to MD Anderson from where we live which is about a five hour drive.
I have had a total of three doses with the following results.
My bloodwork on April 9th showed my AST and ALT liver stats as normal which means we continue with the trial. My 4th infusion went well although I was there from 11:30 am to 7:00 pm.
My CT scan on April 8th had mostly great news with a little not so good. Most of my lesions (tumors) stayed stable with a few decreasing in size. I had three that increased slightly. The big one in my liver decided to get a little bigger as did the one in my spleen. One more increased in size. Dr. Amaria was happy with the results so we are continuing on with the study drug.
I will have a follow up CT scan on May 21st. That scan needs to show a decrease in size of the ones which increased this time and that they are either staying stable or getting a little smaller.
I want to thank everyone for their prayers and good thoughts.